'You owe it to each other': Race & the production of knowledge in AIDS clinical Trials (ACTs) recruitment
Item
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Title
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'You owe it to each other': Race & the production of knowledge in AIDS clinical Trials (ACTs) recruitment
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Identifier
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d_2009_2013:95fe0964dae5:12063
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identifier
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12315
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Creator
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de Guzman, Rebecca,
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Contributor
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Shirley Lindenbaum
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Date
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2013
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Language
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English
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Publisher
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City University of New York.
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Subject
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Cultural anthropology | Public health | clinical trials | critical race theory | evidence-based | HIV/AIDS | knowledge economies | pharmaceuticals
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Abstract
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This dissertation is based on an ethnographic case study of a public health intervention and research project titled "ACTPOC" (not its real name). ACTPOC's goal was to design, develop, and test a group-based standardized intervention to increase the interest in and enrollment of women and people of color living with HIV/AIDS in AIDS clinical trials (ACTs).;Following the NIH Revitalization Act of 1993, recruitment interventions such as ACTPOC draw upon a variety of ideological and material discourses to promote clinical trials participation. According to ACTPOC, the "underrepresentation" of people of color in ACTs results from the social conditions of racism that in turn denies their racial biological ontologies in medication development. ACTPOC designed the group-based educational intervention to remedy the absence of people of color from ACTs, with the hopes that their inclusion would improve drug development and help to mitigate some of the racialized disparities seen in HIV/AIDS. This dissertation explores the contradictions whereby ACTPOC acknowledged the social and institutional barriers that limit women and people of color's access to ACTs at the same that that it depicted race and gender as idioms of essential biomedical difference. Participants' accommodations to and reinterpretations of ACTPOC's efforts to socialize them into biomedical research norms illustrate the contingencies involved in even the most rationalized public health models.;This dissertation's ethnographic exploration of ACTPOC demonstrates how public health interventions to recruit people of color into biomedical research, while undertaken in part to reduce health disparities, may unintentionally yield the opposite effects.
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Type
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dissertation
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Source
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2009_2013.csv
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degree
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Ph.D.
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Program
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Anthropology
